We Want Our

Genome Story

Interactive ebook for all humans at any age

This is a true story.

I’m an artist who writes and draws about genomic science. Little did I know that I had a genetic disease. What a shock! I got treatment, got healthy, and along the way, made “We Want Our Genome Story” eBook about my true story as a genome explorer and cancer survivor.

You’ll meet my avatar, “Artist,” in the illustrated layer of the eBook. Hop around. Look for hidden gems. Tap buttons to open explanations of the science behind her journey. And you may find how fierce and fantastic our Genome Stories can be.

We are all Genome Explorers.

Did you take a DNA test? Yes? Congratulations! You are a Genome Explorer. “We Want Our Genome Story” is made for you. As the First Gen to have our code, we are all students learning together.

A person named Artist leads the way. Asking questions. Seeking knowledge. Finding the wonder. Weaving explanations of science into her illustrated journey. Inspiring you to be genome-literate for the Twenty-first Century.

The Genome Story SciArt Collection

Dark Zone Prints

The prints are a series of images about genomic structural variation. Printed on archival paper with pigment inks and include an explanation of the science.

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Note Cards

The note cards are modified versions of the Dark Zone prints. They come in a set of three, dramatic designs — made for the artist and scientist-in-you.

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Coloring Book

Not just for kids. “We Want Our Genome Story Coloring Book” is for all humans at any age. Peek inside to see how fun learning while you color can be.

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Are you ready for the Genomics Revolution?

“We Want Our Genome Story” takes you into the heart of the Genomics Revolution. What’s that? The convergence of science + tech + your whole genome data — integrated into your everyday life.

A revolution can feel risky. That’s why we need to be genome-smart. To protect and share our data wisely, promote good and just genomic policy.

You and Artist get ready together. She says, “Bring your curiosity and wonder and you will find, your inner artist and scientist start to shine.”

Did you know?

There are dark zones in your genome. They are “dark” because current short-read methods can’t sequence long repetitive sequences and large, duplicated chunks. And that’s where disease-causing variants in genes can hide.

Innovative tech for the next step. New, long-read methods can sequence the dark regions, revealing “camouflaged” genes and untangling repetitive stretches. It is cool tech propelling advances in medical genomics. Check out my post for more about it.